Category: Autonomic Dysfunction

Living With POTS: I Am Not a Zebra

Although Zebras are beautiful creatures, when doctors use that term it brings back so many negative memories and a time of uncertainty for me. My Little Secret Let me tell you a secret, I normally don’t speak much about my “real”…

Steel is Sometimes Covered in Velvet…

I recently returned home from a wonderful Mother’s Day week visiting my son. He has been in the Navy for almost 10 years now and we haven’t been able to spend much time together. I was really excited for the…

A Love Story~Rachel and Steven Phillips

Artwork by Michaela Oteri I recently met Rachel and Steven Phillips on Facebook. Despite going through devastating health challenges, I was struck by their grace and love for each other.This shines through every time they speak or write updates of…

@TheEllenShow – Please Help Rachel Breathe

Help Rachel Breathe Official Website On November 2, 2011 I wrote a blog post about Rachel Phillips. Please read it here.  We are trying to get Rachel and her story on the Ellen DeGeneres Show to raise awareness for Ehlers-Danlos Syndrome and at…

Rise Above Your Limits and P.O.T.S

I was recently asked to be a guest on Becky Jane’s blog, Rise Above Your Limits. Here I discuss how my condition, Hyperadrenergic Postural Orthostatic Tachycardia Syndrome affects me on a daily basis. If you visit her blog and leave a…